Welcome to Parent to Parent of New York State

A Letter from the Executive Director

Parent to Parent of NYS is a place where families of individuals with special needs and the professionals who serve them can meet and share information. This website is maintained as a resource for families.

We've walked the walk and are here to help other families:

• Support – We offer parents/caregivers the opportunity to connect one-to-one with a parent/caregiver of an individual with the same or similar disability or special health care need – someone who has “been there.”
• Information & Referral – We help families locate the information and services  they need
• Trainings – Workshop sessions are available on Understanding Medicaid Service Coordination, Record Keeping and Using a Health Care Notebook, and various other topics.

Added / Updated

Links Digest #116 January 2012

In this issue, Links Digest #116 January 2012, find information regarding NYS policies for the storage and future use of dried newborn screening blood samples, initiatives to integrate mental health into pediatric primary care settings, resources to protect children with life-threatening allergies in the school system, a summary of the final recommendations of 8 Medicaid Redesign work groups and other valuable resources.

Links Digest #115 December 2011

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.