Parent To Parent of NYS

Home Home Home Home Home Home

Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 

Headlines and Highlights

OPWDD to Conduct Survey of those on the Residential Request List

Is your child or loved one on the Residential Request List?  If yes, the following is important information OPWDD has asked us to share:


During the months of August and September OPWDD will be calling families of individuals currently on the Residential Request List, or in some instances the individual if he/she made the request to be on the list, to talk with them about their current situation and whether they continue to have a need for certified residential services now or in the future.  Additionally, families or individuals will be asked about the services they are currently receiving and those they may be interested in getting.  The information obtained in the survey will help OPWDD plan for future residential service needs.


Individuals who have a Priority One status on the Residential Request List will not be called for this survey as their needs are already well known to OPWDD.  It is also important to know that this survey is not part of an individualized planning process.  Any individual needs that are identified during the survey will be referred to the MSC or local DDRO.


OPWDD is asking MSCs to help by providing updated contact information for individuals and family members, including their current phone number and address and their primary language.  OPWDD is also asking MSCs to talk to individuals and families about the survey and, if they want help, to help them decide what their answers are to the survey questions.


A copy of the anticipated questions surveyors will ask family members is available at the "Learn More" or "Download PDF" link.  We encourage families to review the questions in preparation for the survey call.



Learn More

Comments on Proposed Priorities Requested

Disability Rights New York (DRNY) is the federally and state-authorized Protection and Advocacy System and Client Assistance Program for people with disabilities in New York State.  DRNY provides legal and other advocacy services to advance and protect the rights of people with disabilities and ensure that they are free from abuse and negect and unlawful discrimination.


As part of this work DRNY operates several programs, including the Protection and Advocacy for Individuals with Intellectual and Developmental Disabilities (PADD) program.  The propsed priorities for the PADD program for the period October 1, 2015 to September 30, 2018 can be found at the "Learn More" or "Download PDF" link.  Once finalized, these priorities will be a statement of where DRNY will focus its advocacy efforts and resources on behalf of people with developmental disabilities during the next fiscal year.


DRNY is currently seeking public comment regarding these proposed priorities.  All comments received by July 31, 2015 will be given full consideration.


You can e-mail your comments to DRNY at this address:


You can also mail your comments to:  Disability Rights New York, Attn:  PADD Priorities, Suite 450, 725 Broadway, Albany, NY  12207


If you prefer to discuss your comments rather than put them in writing, please contact DRNY at Phone:  (518) 432-7861, TTY:  (518) 512-3448, Toll Free:  (800) 993-8982


Learn More

Position Available at Parent to Parent of NYS

Parent to Parent of NYS has a part-time Regional Coordinator position available in our South Central office located in Vestal, NY.  This position will add staffing capacity to a very busy and well-connected office and as such, the successful applicant will work along with our existing South Central office staff.  Please see the attached job announcement for more information.  The application deadline is Friday, August 7, 2015.

Learn More

Making the Science of Genetics Personal

Mary Jo Hebert, Regional Coordinator in Parent to Parent of NYS' Capital District office, moves beyond the headlines about human genome mapping to the very personal importance of genetic science for families raising children with disabilities in this beautifully written op-ed piece published by the Albany Times Union April 25, 2015. (Shared here with permission)

Learn More

SurveyAbout High School Graduation Options

YOUTH POWER! wants to know more about young people’s experiences with high school graduation options. By completing this survey you will help us work with the New York State Education Department to be sure all young people received the highest quality education. 

Learn More


Parent to Parent of NYS Brochure

Learn More

Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.

Learn More

Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.

Learn More


State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.

A Family to Family Health Care Information & Education Center.

Learn More

A Message From Our Director