Welcome to Parent to Parent of New York State

A Letter from the Executive Director

Parent to Parent of NYS is a place where families of individuals with special needs and the professionals who serve them can meet and share information. This website is maintained as a resource for families.

We've walked the walk and are here to help other families:

Support – We offer parents/caregivers the opportunity to connect one-to-one with a parent/caregiver of an individual with the same or similar disability or special health care need – someone who has “been there.”
Information & Referral – We help families locate the information and services they need
Trainings – Workshop sessions are available on Understanding Medicaid Service Coordination, Record Keeping and Using a Health Care Notebook, and various other topics.

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Added / Updated

Links Digest #131 April 2013

The April 2013 Links Digest highlights a NYSARC blog post discussing the framework for OPWDD's managed care system as developed during the 2013-2014 budget process. This edition also includes a parent's account of how she learned to partner with geneticists, an interesting journal article regarding the connection between health homes and parental coping, and a list of key questions those considering college should ask of the Disability Services Office on campus.

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Guide to Understanding Supports and Services Administered through NYS Office of Mental Retardation and Developmental Disabilities

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.

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