AHA/AS/PDD
PO Box 475
Roslyn Heights, NY 11577
Website: www.aha-as-pdd.org
Listings of contact numbers for hot
line, support group dates, locations, and times. The groups meet monthly and are
open to all at no charge. Groups for parents of school age children,
parents of older teens and adults, and for individuals on the spectrum. Also a
Yahoo email list, conferences and events, resources, book lists, useful links to
other websites, personal reflections and more.
Adaptive Soccer Mastic Sports Club has started an Adapted Soccer Division for children with
special needs from ages 3-14. 20 week program for $35 and 10 week program for
$20-uniforms are $30. Call Christine for more information 631-404-8813
Adaptive Dance Class For children with special needs-adaptive dance/tumbling class Saturdays
1-1:45. Call Christine for more information 631-404-8813.
Autism Network (New York region)
A not for profit organization that offers workshops for parents and family
members. Also offers Board of Education approved professional development
coursework to teachers and other educational staff. Provides consultants
to school districts and assists in public awareness campaigns nationwide.
Phone: (631) 220-4727 Website:
www.autismnetworks.com
Children's Community Child Care
and Learning Center, a program of CPC, offers "camp" during school breaks for school-age children, ages 5-10.
Call the center nearest you.
Space is limited.Ronkonkoma
(631)585-2020; Port Jefferson (631)476-9698
Epilepsy Neurological/Diagnostic Treatment Program Offered by The Epilepsy Foundation of LI Clinic, a joint effort with the LI
Jewish Hospital Comprehensive Epilepsy Center. Board certified neurologists will
diagnose and treat seizure disorders. All patients will be offered counseling
and social work services as part of the program. People will be referred to LIJ
Hospital should further testing be required. Fees will be covered by medical
insurance or based on ability to pay. The seizure clinic will be held from 8:30
to 11;30 a.m. at the Garden City Epilepsy Center, 506 Stewart Ave., Garden City
on the fourth Thursday of each month. For appointment or information call
739-7733.
Ezra Center Do you have a child who needs to build their
social skills? Groups are available at the Ezra Center for People With
Disabilities located at the Barry and Florence Friedberg JCC. For information,
call Mark Bernstein at 766-4341 ext 129.
H.E.L.P. for Parents (Helpful Educational Program for
Parents) Six
session program for parents & teens-this unique program will include several
interactive sessions on developing behavioral intervention plans, as well as
developing and analyzing effective parenting strategies for children/teens with
behavioral issues. Other curriculum areas that will be covered include
advocating for your child, helping you know what accommodations he/she needs in
school, building on the child's strengths, and what can you do to help your
child, teen, young adult with AD/HD. Please contact Beth at bkaplanek@aol.com or 631-547-1230.
HearingExchange
PO Box 689
Jericho, NY 11753
(516) 938-5475 www.HearingExchange.com An online community for people
with hearing loss, families and professionals. Offers current news,
articles, resources, forums, chats and more on issues related to hearing loss,
particularly for parents. Founder Paula Rosenthal, J.D. is both an adult
with hearing loss and a parent of a deaf child. In addition to publishing
HearingExchange she does parent consultations, speaks to groups and writes
syndicated articles. A Long Island parent support group was formed in
2005.
Parent Information Exchange and Support Group These groups are offered on every other Saturday evening at 7 p.m. and run
for about 90 minutes. For more information or to enroll, call the NYFAC office
at 718-641-3441. Childcare is always available.
The National Council Helping Hand for Caregivers Caring for Caregivers is a nonprofit committee founded out of concern for
those members of the community who are providing 24-hour care and supervision
for a loved one in their home. The goal is to provide up to eight hours of
professional respite care each month. The application process is need-based,
easy to complete and respectful of the caregiver's privacy. Once the application
has been approved, the caregiver will contract with the agency of his/her choice
for provision of service, for four hours during any two-week period, up to a
maximum of eight hours per month. Applications are currently being accepted from
the Plainview-Old Bethpage, Bethpage, Syosset, Woodbury and Hicksville areas.
The committee's hope is that these few hours will provide a little breathing
space so that the caregiver can attend to his/her own needs. Call 433-8479 for
an application.
Recreation Does your child have a special need? This one hour workshop features
stories, songs, playtime and support. Saturdays, March 12, April 9, and May 14,
2005 at 1 p.m. Center Moriches Free Public Library, 235 Main St., Center
Moriches, NY 631-878-0940.
Sagamore
Children's Psychiatric Center presents Common Sense Parenting - a six
session skill development program for parents. For more info contact Diane Tuna
at 631-673-7836.
Social Language Groups for Adolescents and Teens Purpose: to facilitate appropriate communication and social interaction with
peers. Skills targeted include: appropriately greeting peers, greeting skills
including initiating conversation and turn taking, appropriately expressing
opinions and emotions, maintaining eye contact with conversational partners.
Weekly groups are held on Saturday mornings at the Hy Weinberg Center, Adelphia
University, Garden City. For information, contact the Center at 516-877-4850.
Social Skills Groups in
Hewlett 516-596-0073
Spark Development Center-variety
of services for children with ADHD/ADD and other developmental disabilities
located in Lynbrook. Call 888-864-4648 or www.sparkcenters.com
Support Group for Parents of Older Teens & Adult
Children The Advocates for Individuals with High Functioning Autism, Asperger's
Syndrome and other Pervasive Developmental Disorders meets every Thursday 7-9
p.m. at the James E Allen Elementary School, Deer Park Road, Dix Hills, in the
200 wing. For information call Bernice at 631-269-5709 or e-mail bernicep@optonline.net. All support
meetings are free, open, no registration
required.
Support group for Parents of Children with Spina Bifida Contact Leslie at 631-821-9028
Support group for Parents of children with a psychiatric diagnosis at NAMI Queens/Nassau
2nd and 4th Tuesdays of each month
Joan Ambrosio, CSW 516-326-0797
Transition Support/Parent Group 1st Wednesday of each month
6 - 8 p.m.
East End Disabilities
Riverhead, NY
For parents of children in special ed
- East of Riverhead, South Fork and North Fork. For further information, contact
Kathy Mulligan 631-283-6631.
UCP
of Greater Suffolk Family Support Forum Family members of persons with
developmental disabilities (from infancy through adulthood) can
post questions & answers to each
other and also to an UCP-Suffolk Service Coordinator.
Funded for start-up and on-going monitoring by Long Island Developmental
Disabilities Service Office under a Family Support Services Contract.
YOGA for children with special needs at UCP in Commack,
$15 per session call 631-543-2338
Nassau County Family
Support Groups
Bereavement Group for Parents of a Special Needs Child: Six
week closed group for parents who have given birth to a special needs
child and are learning how to cope with their child's diagnosis. Contact
Monica Ann Wakely 516-932-3341
Children’s Social Skills Group,
Adult Developmental Center, Hewlett, 516-596-0073. This program
aims to help elementary school children develop communication
and problem solving skills. Three groups: Mondays-Wednesdays,
6-7pm.Call for registration information.
Epilepsy
Support Group,
Epilepsy Foundation of Long Island, 506
Stewart Ave., Garden City, (516)739-7733,
ext. 415. Do you have seizures? Are you
having difficulty with jobs, relationships,
etc? Are you isolating yourself from family
and friends? If you answered yes to any or
all of the above questions, head to the
Clinic for an comprehensive evaluation from
an epilepsy expert. Individual, group and
family psychological, psychiatric and
neurology evaluations, as well as
pyschotherapy are all available.
Friendship
Connection Foundation,
17 Maple Drive, Great Neck, (516)422-4727.
This unique, non-profit group serves the
needs of learning and developmentally
disabled adolescents, adults and their
parents who are battling anxiety, depression
and loneliness. Weekly meetings are held at
The New York Institute of Technology in Old
Westbury. Call to sign up or learn more
about any of their special programs.
Grandparent
Advocates Supporting Autistic Kids,
North Shore Child and Family Guidance
Center, 480 Old Westbury Road, Roslyn
Heights, (516)626-1971,
www.northshorechildguidance.org. This
support, informational and advocacy group is
for concerned grandparents of autistic
children. All adult family members are
welcome. All meetings take place the last
Thursday of every month (except December),
10am-11:30am.
Grieving Parents: Fetal Demise, Parents of Children with Special Needs,
Death of a Child, Termination of Pregnancy due to Genetic Anomoly. For
referral to above referenced support groups, call 516-663-2288.
Grieving Parents Support Group:
Six week bereavement group for parents who
have suffered the death of a child. Professionally led group. Contact
Monica Ann Wakely at (516) 932-3341
Hispanic Counseling Center:
Mondays 6pm-7:30pm (childcare available), contact Milagros Garcia or Karen
Sierra at 516-538-2613.
KIDS (Kids Interested in Diabetes)-Designed to teach children about
diabetes, age group 6-11, meets monthly, Call 516-663-2350 for dates and
times.
Kindred Spirits:Parents of Children with Diabetes meets monthly at
Community Outreach Center, 101 Mineola Blvd., Mineola, NY 11501. Call
516-663-2350 for dates and times.
KISS (Kids in
Special Services),
Mid-Island Y JCC, 45 Manetto Hill Road,
Plainview, (516)822-3535. An array of
classes including sports, arts & crafts,
socialization and nutrition are being
offered to high functioning children with
developmental and/or learning disabilities
such as language delay, AD/HD, Asperger’s
and Autism Spectrum disorders. Most programs
will take place on Tuesdays-Thursdays, and
support groups will meet on Sunday mornings
from 10:30-11:45. Call to reserve a spot for
your child.
Learning to
Learn Center,
North Shore Child and Family Guidance
Center, 480 Old Westbury Road, Roslyn
Heights, (516)626-1971, ext. 333. This new,
special program is designed to identify and
assess learning and developmental
disabilities and attention deficits, and
help children and their families adjust to
remediation strategies and adopt appropriate
coping skills If you suspect a problem in
your household, don’t hesitate to call the
Center for more information.
New Support
Groups Formed,
Peninsula Counseling Center, 124 Franklin
Place, Woodmere,(516)569-6600. The Peninsula
Counseling Center is forming new support
groups. Get the support you need from groups
like Parents of Boys and Girls Ages 6
through 12, Thursdays; Group for Girls Ages
11 through 13, Wednesdays, 8pm; and
Parenting Your Teenager, Mondays; Group for
Boys Ages 8 through 11, Wednesdays, 7pm;
Teen Girls’ Socialization Group. Call for
more information on these groups and
classes.
New Survivors: Support Group for Parents of
Children with Chronic Illness and/or Disability
meets every other Thursday in Nassau County.
For more information and meeting schedule call Maggie at (516)
498-2004
The Next Step,
Mid-Island Y JCC,
45 Manetto Hill Rd., Plainview,
(516)822-3535, ext. 332. Offers teens with
special needs in grades 7-12 the opportunity
to develop basic leadership skills and
perform community service. Meets two Sundays
per month, 1-3:30pm. Call for a schedule of
meetings.
North Shore Child and Family
Guidance Center: Mondays 7pm-9pm every other week (children's activity group
available), contact Andrea Cutler at 516-626-1971.
Parents of Asthmatic Children meets the first Thursday of every month at
7:30 p.m.-222 Station Plaza, Suite 603, Mineola, NY 11501. For more
information call Kathy McKillop 516-663-4937.
Parents of Children on the Autism Spectrum @ the NS/LIJ Center for
Autism-contact Pat S. at 516-484-8404
Parents of Hearing-Impaired Children Support Group: Meets 7 p.m., first Wednesday of every month at Long Island Jewish
Medical Center, Hearing and Speech Center, Lower Level Conference Room,
Department of Otolaryngology & Communicative Disorders, New Hyde Park,
NY 111040. Telephone (718) 470-8631; TTY (718) 470-4605.
Peninsula
Counseling Center,
124 Franklin Place, Woodmere, (516)569-6600,
www.peninsulacounseling.org. Nassau County’s
largest licensed non-profit mental health
center has served over 100,000 people since
1913. If you are interested in receiving
support for a variety of issues, such as
eating disorders, drug and alcohol abuse,
services for handicapped, bereavement groups
or support for parents of children with
physical or developmental disabilities such
as ADHD, Peninsula Counseling Center has the
services that you may be searching for. Call
or go online to learn more.
Peri-Natal Bereavement Groups: Six week closed group for
parents who have suffered a miscarriage, or have had to make the awful
choice to terminate a pregnancy due to Genetic Anomolies. Contact Monica
Ann Wakely 516-932-3341
Pet Therapy
Program,
North Shore Child and Family Guidance
Center, 480 Old Westbury Road, Roslyn
Heights, www.northshorechildguidance.org,
(516)626-1971, ext. 309. Sandra Whiteside,
LCSW, who was a therapist at the Center for
19 years, is offering this special service
to help children who are fearful or deal
with anxiety or depression daily. The
animal-assisted therapy has been helping
children for years. Call to learn more about
this amazing program.
The Respite Center:
Wednesdays
10am-noon every other week, contact Debbie Fasciana at 516-485-5976. Tuesdays
6:30pm-8:30pm, every other week (childcare & light dinner provided), contact
Lucia Podolski or Erica Harper at 516-485-5976.
Sensory Yoga
for Children with Special Needs,
Om Sweet Om Yoga, Ave A, Port Washington,
NY, (516)944-YOGA, gail@omsweetomyoga.com.
This workshop is for teachers, parents, OTs,
PTs, Speech and other professionals working
with children with special needs. Discover
the benefits of utilizing and integrating a
Sensory Yoga Practice for children with
ADHD, Learning Disabilities, Sensory
Integration Difficulties and Autism Spectrum
Disorders, including PDD and Aspergers as
well as behavioral and emotional
disturbances. Understand why a Sensory Yoga
Practice works, and learn some basic
strategies and techniques for home,
educational and therapeutic settings. Call
or email for registration.
Single
Parent Action Network - SPAN,
480 Old Westbury Rd., Roslyn Heights,
(516)626-1971. Meets the changing needs of
men and women who head one-parent families.
Helps single parents and their children cope
with the crises of separation and divorce.
Developed by single parents themselves along
with the professional staff of North Shore
Child & Family Guidance Center.
Support group forming for parents of disabled children at The Peninsula
Counseling Center through the South Shore Services for the Handicapped. The
group meets every Monday @ 7:30 - 8:30 in Woodmere. For more
information please contact Peggy Grossman at (516) 569-6600
T.A.P.S. (Toddler and Pre-school Support)-Support group for families of
young children with diabetes. Children and siblings are welcome to the group
meetings and fun activities are planned for the. Call 516-663-2350 for dates
and times.
Suffolk County Family
Support Groups
Eastern LI Support Special Needs Child a group of parents who resources as well as support with school
issues. For more information visit their website at http://health.groups.yahoo.com/EasternLISupport/ or call (631)
591-1111
For families raising children with social, emotional and behavioral
challenges
meets every first and third Tuesday of the month at THREE (3)
location in Suffolk County. Call (631) 853-2793 or (631) 853-2794 for
locations and more information.
Save our Sanity (SOS) located at Grace Cathedral International,
Uniondale. For parents of children in special ed - contact Rhonda Savain (516) 539-1251
SILO - Suffolk Independant Living
Organization has staff that is trained to address the needs of Spanish
speaking residents of Suffolk County living with a disability. SILO also
has a Youth Education Advocacy Specialist, Rosemarie Koworowski who is
available to work with parents on the many issues surrounging the education
of children with disabilities. She can be reached at (631) 654-8007
The Circle Program Family
Support at Pederson Krag Center: Tuesday- 10:00am-12:00pm Thursday-
7:00pm-9:00pm-child care available for 5-13 yr. olds Contact Dolores Lundin at
631-920-8302 or Christine Juman at 631-920-8000 ext. 5008.
Children and Families Mental
Health Center:
3rd Tuesday of the month, childcare available Contact Jackie
Watkins or Ruby Williams at 631-598-4726.
South Brookhaven
Mental Health Clinic: Every Wednesday 10am-11:30am. Contact Barbara Latsko at
631-852-1072.
Riverhead Mental
Health Center: 1st & 3rd Thursday
of every month from 10am-11:30am. Contact Natalie Perry at 631-852-1440.
Herkimer Recreation Center:
1st & 3rd Tuesday
of every month 10am-11:30am. Contact Deb Begley at 631-853-2793.
Amityville
Professional Building: 1st & 3rd Tuesday of every month 7pm-8:30pm. Contact:
Deb Begley at 631-853-2793.
Wyandanch/Wheatly
Heights Ambulance Corp.: every Friday of the month from 7pm-8:30pm. Contact
Denise Baines at 631-853-7211.
Abundant Life
Church: 2nd & 4th Wednesday 10am-11:30am. Contact Gina Sloof at 631-853-7342
or Laurie O'Reilly 631-853-2794 or 631-853-7224.
AHA/AS/PDD East End Support:
first Wednesday of the month at 7:30 p.m.
East End Disabilities. For more information call 631-734-7082
Sibling adults that have a sibling with autism.
Call 631-499-3343 for more information. The cost is $175 for 10 weeks.
