Parent To Parent of NYS

Home Home Home Home Home Home


Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Parent to Parent of NYS Salutes Susie Nettleton


Parent to Parent of NYS salutes Susie Nettleton for 19 1/2 years of service to our organization on the occasion of her retirement July 31st.

 

Part of our organization's very beginnings, Susie has been a tremendous resource to families in the Finger Lakes region.  She counts it as a privilege to have shared the journey with many families as their children grew from infant/toddlers to young adults.

 

From Susie:  "Parent to Parent of NYS has grown and changed over the nineteen and a half years I have worked here.  Our mission of connecting families with each other hasn't changed.  There are powerful connections that get made between parents.  Nothing can replace talking with someone who has been there, done that and has the T-shirt and coffee table book to prove it!"

 

On behalf of our Staff, Board of Directors, volunteer Support Parents and the families we serve, Parent to Parent of NYS extends our thanks to Susie for her steadfast support of parents and wishes her all the best in this next chapter of life!

 

Michele Juda, Executive Director

Learn More


Transition to Work or Post-Secondary Education

Taking responsibility, and being able to advocate for one’s own future education and employment will be different for each person.  For everyone, self-direction and autonomy are desired outcomes.  For parents caring for a child and advocating for their child’s needs and education, it is a shift to be guiding a teen or young adult as they move through adolescence towards more independence.    

Learn More


Health Care and Transition

Taking responsibility and being able to advocate for one’s own health care will be different for each person.  However, for everyone, self-direction and autonomy are desired outcomes.  For parents who have cared for a child and advocated for their child’s health care, it is a shift to be guiding a teen or young adult as they move through adolescence towards more independence.   

 

Learn More


Internet Resources for a Successful School Year

Compiled for the start of the 2013-14 school year by Parent to Parent of New York State.

Learn More


Understanding Medicaid Service Coordination

This 8-page booklet is available here in PDF or by contacting your regional office.

 

Click here for Understanding Medicaid Service Coordination -- in Spanish

Learn More



Recommended

CSS - Self-Determination Using Consolidated Supports and Services (CSS)

Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services.  It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan.  It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).  

To read more, download the PDF.


Learn More



Disability Prevention Poster

Parent to Parent of NYS designed this poster to promote prevention of Fetal Alcohol Spectrum Disorders and Shaken Baby Syndrome.


Learn More



Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.


Learn More



Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.


Learn More







SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

Learn More





A Message From Our Director


--}

Added / Updated

Caregiving: A Personal Story

By Janice Fitzgerald


Learn More



Advocating Through Letter Writing

Booklet of information and tips for parents, by Parent to Parent of NYS.


Learn More



Health Care Notebook

A Health Care Notebook is an organizational tool for families who have children with special health care needs.


Learn More