Parent to Parent of New York State
Connecting and supporting families of individuals with special needs

 

This page last updated on March 26, 2008
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Western Area News
(Scroll down for Event Listings)

Parenting Groups for Parents with Children Ages 2-5 offered by Diversified Children's Services
       
For location, dates and times, call 871-9883.

Advocate – the Western NY Family Support Services Consumer Councils Need You.
        Parents of children with a developmental disability are needed to participate on the Family Support Consumer Council to develop and monitor family support services for the 7 counties region of Western NY DDSO
        The Family Support Consumer Councils work in partnership with the Developmental Disabilities Services Offices to develop and monitor policies, services and supports to enhance a family's ability to provide in-home care to their family member with a developmental disability. Services range from counseling and training, respite, recreation, to family reimbursement for the purchases of goods and services.   For further information about becoming a Council member, contact Nan Doyle at 716-517-2165 or Christine Tremper at 716-532-5522 x 2090

Strattera Study
Strattera is the only non-stimulant medicine which is FDA approved for the treatment of ADHD in children.  The Center for Children and Families is looking for boys and girls who have been diagnosed with ADHD and are between the ages of 6 and 11 and are interested in FREE medication and counseling.  For more information, call 829-2244 x142.

New York State Office of Mental Health (NYSOH) needs your help with the nominations of parents of children with mental health needs who are under the age of 18. They are recruiting family members for both the mental health planning advisory committee and children's subcommittee of that group. The MHPAC meets quarterly and the kids sub-committe meets about 3 times a year. If you are interested contact Marcia Fazio at COODMLF@omh.state.ny.us. Overnites and travel are paid for.

Parents Only, a support group for parents of children and teens with mental health and/or developmental issues, meets from 6:30-8:00 p.m. on the 2nd and 4th Wednesdays of the month at St. John's Catholic Church, Orlean, beginning January 25, 2006. For more information, call Leigh VanDeWalker at 373-4602 or 378-4142.

Summit Adventures
3:00 p.m.-5:30 p.m.
Monday thru Friday
        A specialized after school program for children with developmental disabilities from 3 to 18 years of age. For more information, call Marlene Mancuso at 716-837-2441 ext. 116.   

Western Area Events

Moving out is hard to do! 
Thursday, 3/20/08
 6 to 8 pm
 WNYDDSO, Building 16, Conference Center, Room 147
 1200 East & West Road, West Seneca, NY 14224
           This is a free workshop sponsored by Parent to Parent of NYS, People Inc. and the WNYDDSO.  It is for parents who aren’t comfortable with the idea of their family member with DD moving out of the family home.  Dan Gribbin, the Family Liaison for People, Inc. and several parents who have struggled with this issue will talk about the experience and answer questions.
To register or for more information contact Lorraine Blum, Western Region Coordinator, Parent to Parent of NYS at 716-517-3448 or 1-800-305-8813or email at lblum98@yahoo.com.  Please register by Tuesday, March 18.
 
Spring Autism Conference
Tuesday, April, 8, 2008
8:30 am to 3:30 pm (registration at 8 am)
Genesee Valley BOCES Center
80 Munson Street, Leroy, NY 14482
           This is a free conference sponsored by CASE (Center for Autism Support and Education).  This conference will focus on an overview of ASD, communication strategies and resolving behavioral challenges.  It is open to parents, professionals and anyone else who lives or works with individuals with ASD.  Lunch is on your own.  For more information or to register call 716-332-4170 or 1-866-277-4762.  Please register by March 28.

How can I buy my own home?
Tuesday, April 29, 2008
6 pm to 8 pm
Western NY DDSO
Building 16 Conference Center, Room # 153
1200 East & West Road
West Seneca, NY 14224

Bonnie Evert, Housing Coordinator for the WNY DDSO will talk about the OMRDD Home of Your Own program and the US Department of Agriculture program for first time homebuyers in rural areas. Melody Anne Marchese, Homeownership Counselor for Belmont Shelter Corporation will discuss The Homebuyers Club and some incentives for first time homebuyers. Peter Williams, Office Manager and Norma Myers, Assistant Manager of the WNY Revenue Support Field Office will be available to answer questions about SSI and Special Needs Trusts in regards to buying a home. 

Please register for this free workshop by Monday, April 28. 
To register or for more information contact Lorraine Blum, Parent to Parent of NYS, Western Region Coordinator at 716-517-3448 or toll free at 1-800-305-8813. You can also register by email: lblum98@yahoo.com

Developmental Disabilities Awareness Day
Thursday, May 22, 2008
8 am to 4 pm
Buffalo Convention Center
Franklin Street, Buffalo, NY
            This is an all day event featuring workshops, a large agency fair, keynote speakers and entertainment.  This is the 20th anniversary for this event.  It is sponsored by DDAWNY (The Developmental Disabilities Alliance of WNY).  For more information go to the DDAWNY website at www.ddawny.org.

Medicaid Service Coordination (MSC) for Families - Getting the Most from your Child's Program

Are you getting the most from your child's service coordination program?  Do you understand what your rights are under MSC?  Do you know what to look for when choosing a service coordinator?

MSC for Families is designed to inform families about how MSC works and to explain their rights under the program.  By being informed, you and your child's service coordinator can become partners in advocating for and gaining access to necessary services and supports for your child. 

Family members who wish to register for this class may do so by calling Mary Jo Hebert at 1-800-305-8817.  In addition, we are also available to present trainings on MSC at conferences, support groups, or meetings.  Call today to schedule a training for your group or organization.

Now Available By Video Conference at your local Developmental Disabilities Services Office (DDSO) in the city or town indicated in the list below:

June 2, 2008
10 - 12

Bernard Fineson - Queens
Western NY - Perrysburg
Sunmount - Plattsburgh
Long Island - Commack
Finger Lakes - Rochester
Central NY - Rome
Broome - Oneonta
Taconic - Poughkeepsie
Capital District - Schenectady
Staten Island - Staten Island


You may also be interested in The Parent Network of  WNY's page for Upcoming Events


 

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Copyright 2008 Parent to Parent of New York State. All Rights Reserved.

Janice Fitzgerald - Executive Director
ed@parenttoparentnys.org
(518) 359-3006  or in NYS 1-866-727-6970

Parent to Parent of NYS - Statewide Office
500 Balltown Rd.
Schenectady, NY 12304

518-381-4350 or 1-800-305-8817

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