All-Abilities Water Sports Recreation Event in the 1000 Islands July 2008

North Country Access 2008 is an all-day all-abilities water sports recreation event taking place at the Antique Boat Museum in Clayton, NY, July 19, 2008. Children and adults with mobility impairments, sensory limitation or other disabling conditions will have the chance to fully participate and are encouraged to register for this rare opportunity in a world that is not designed with disability in mind.

Water sports and educational clinics will take place throughout the day Saturday, July 19 including rowing a traditional St. Lawrence skiff, sailing solo or with an experienced instructor or kayaking the quiet waters of French Creek. For those anxious to try waterskiing appropriate equipment will be available and for those just wanting to stay landbound, fishing off the dock is an option. 

How about a speedboat ride? Bring a secure hat and hold on to your camera while thundering down the River in a gleaming mahogany triple-cockpit runabout from the Museum’s fine collection of wooden boats. On Sunday, July 20 a rafting trip on the Black River will be offered to those interested. Advanced registration is required for the rafting trip. A registration packet and complete event details will be made available at www.ncaccess.org as it becomes available. This event is sponsored by North Country Access Cycling, Northern New York’s chapter of Disabled Sports, USA.  

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Alliance for Children with Serious Illnesses (ACSI) Forms in St. Lawrence County
        The Alliance for Children with Serious Illnesses is a partnership between individuals and organizations in St. Lawrence County who are committed to improving the delivery and quality of services received by families of children who have a chronic condition that significantly affects their health and may result in a shortened life expectancy. If you would like to ensure that services are of the highest quality and delivered in the most efficient way for the family, please contact Sue Cappione at (315) 265-3105 or by scappione@hospiceslv.org about becoming a member and helping out with ACSI activities.

Funding Available for Assistive Technologies
    Sunmount DDSO has announced the availability of funding for Assistive Technologies including environmental modifications and adaptive technologies for people with developmental disabilities residing in the counties of Clinton, Essex, Franklin, Hamilton, Jefferson and St. Lawrence.  The focus is projects which address health, safety, egress and accessibility.
     Contact your Medicaid Service Coordinator for more information or Assistive Technology Proposal Manager, Kay Pauquette at 518-359-2962.   

New E-group for Parents of Children with Emotional or Behavioral Issues
             The St. Lawrence County, NY Parents' support group of Families Together in the North Country is for parents and other adults who care for children with emotional and behavioral issues who reside in St. Lawrence County, NY. Discussion is open to anyone who needs support or gives support regarding children with issues that are diagnosed or not. As many parents cannot or will not physically attend support group meetings, this forum was formed to have parents reach out at any time of day or night when they get an opportunity to express themselves.To join this email group visit their webpage at
 http://groups.yahoo.com/groups/StLawrenceCountyParents/ or send an email message to StLawrenceCountyParents-subscribe@yahoogroups.com

 Advocate -Sunmount DDSO Family Support Services Consumer Council Needs You.
        Parents of children with a developmental disability are needed to participate on the Family Support Consumer Council to develop and monitor family support services for the 6 counties in the Sunmount region.  The Council meets one evening per month in Tupper Lake. Mileage expense is reimbursed for Council members.
        The Family Support Consumer Council works in partnership with the Sunmount DDSO to develop and monitor policies, services and supports to enhance a family's ability to provide in-home care to their family member with a developmental disability. Services range from counseling and training, respite, recreation, to family reimbursement for the purchases of goods and services.  For further information, please call Kay Pauquette at 518-359-2962.

Adirondack Stride for Pride Provides Fun and Friends
        Adirondack Stride for Pride is a group of North Country families with children ages 5-21+  who have a physical or developmental disability and want to get together with and/or make friends, to participate in some fun activities, such as bowling, game night, ice skating, dancing or what ever else we can think of that is fun for all!  It is a great way for kids to get to know each other and for families to get to know each other!  
         If you would like more information on Adirondack Stride for Pride, e-mail Mike Hannon and he will make sure you receive more information strideforpride@hotmail.com

NYS OMRDD Offers Free Training and Development Programs
            NYS Office of Mental Retardation and Developmental Disabilities offers free training and development programs on an ongoing basis throughout the state.  People with developmental disabilities and family members/advocates are encouraged to register for any sessions of interest.  Listed below are a few trainings being offered in this area that you may find of interest.  For a complete listing, more information, or to register, please visit www.omr.state.ny.us and click on “OMRDD’s Training and Development Catalog” or phone (518) 473-1190.

SEAWAY VALLEY AREA EVENTS

For more information about any of these events, call the Seaway Valley Office of Parent to Parent of NYS at (315) 379-1538; 1-800-603-6778 or the individual contacts for each item.

FTNC Parent Group
Noon-1 p.m
Each Wednesday
Unitarian Universalist Church
3 1/2 East Main St.
Canton, NY
        For those raising a child with behavioral, emotional, and/or social issues. Sponsored by Families Together in the North Country. Contact Rose Edward at 315-347-3919 or redward@twcny.rr.com.

Alliance for the Mentally Ill of St. Lawrence Valley
3:00 - 5:00 Business Meeting
5:00 - 6:00 Light supper
6:00 - 7:00 Support for Family and Consumers
4th Monday each month
Community Room
E. J. Noble Building
80 East Main Street
Canton, NY
       For more information, contact Lynne Matott, President, at (315) 287-9180 or by Email lmhmatott@yahoo.com

Parents Night Out:  Legal Aid Society of Northeastern NY
Wednesday, May 28, 2008
5:00 – 8:00 PM
CP Association of the North Country
4 Commerce Lane
Canton, NY
            Cynthia Eyler, Attorney, will inform us about services available through Legal Aid Society of Northeastern New York that are of particular interest to families of individuals with special needs.  Parents Night Out is an opportunity for parents or primary caregivers of individuals with special needs to meet, engage in social activities, share information, and learn about community resources. Refreshments provided. Child care available for those pre-registered for the service. For more information contact the Seaway Valley Office of Parent to Parent of New York State by calling (315) 379-1538; 1-800-603-6778 or send an Email to svp2p@verizon.net .  RSVP recommended.

Who, What, When, Where, and Why: Sensory Issues and Needs of Children
7th Annual LDA North Country Conference
Monday, June 2, 2008
9:00 a.m. – 3:00 p.m.
Bonnie Castle Year Round Resort
31 Holland Street
Alexandria Bay, NY

Presentation by Cynthia Roth Pahr, M.Ed. will discuss why many of today’s students are struggling with sensory issues, motor skill problems, and attention issues.  Attendees will learn fun, practical, easy to implement ideas for improving skills in the areas of fine and gross motor, attention and visual tracking skills which can be used in pre-school settings, elementary and middle school’s current curricula.  Included in the presentation are ideas to improve handwriting in a quick fashion as well as many activities to help children with attention deficit hyperactivity disorder and/or other neurological disabilities.  Parent scholarships are available.  For more information, call 315-785-9440.  Registration deadline is May 23, 2008.

Summer Inclusion Institute
August 3-6, 2008
Minnowbrook Conference Center
Blue Mtn. Lake, NY

How do we move inclusion from a good idea to everyday life?  How do we build community partnerships that really work? The Institute will cover person centered planning, inclusion, and community organizing. The Adirondack Arc will support attendance by parents from Sunmount region.  For more information, contact Patti Littlefield at 518-359-3351, ext. 120 or Les Parker at 518-891-6565, ext. 114 or email inclusion@adirondackarc.org.

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