Parent to Parent of New York State
Connecting and supporting families of individuals with special needs

 

This page last updated on February 20, 2008

 

Health Care Information & Education Center Home

504 Plans

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Links Digest

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Parents can receive a free binder and tote bag by taking our brief Health Care Notebook orientation!  See our section on Record Keeping to sign up.

Family To Family

Health Care Information

& Education Center

Help for families of children with special health care needs seeking objective, family-friendly health care information.

Through the Family to Family Health Care Information and Education Center, families can:

  • Obtain information and referrals on a variety of topics (see links below and on right)

  • Connect with Health Care Resource Parents (Request a Parent Match)

  • Receive training on health care insurance and other financial issues, working with health care professionals in your home, collaborating with professionals, health care resources, and other health care topics. (See our Online Training Center.)

Medically Fragile Families Network e-group

 

You might also be interested in:

Asthma Patient Action Plan http://schoolasthmaallergy.com/html/toolkit/library/AsthmaActionPlan.pdf  This is a form concerning student's medication needs and specific asthma warning signs which is to be filled out by the parents and physician. A copy of this plan should also be readily available to any teacher or physical education instructor who may be overseeing the student with asthma during the time of an episode.

Autism Medical Insurance Discussion Group Forms  The Autism Insurance Information discussion group has been developed for discussions regarding medical insurance coverage for Autism: http://tinyurl.com/gbhy4 .  The purpose is information sharing, ideas on working with the system of insurance provisions and ways of ensuring coverage is provided according to the laws that govern Insurance, Medicaid and Tricare.  Within the Autism Community there is a wealth of information, experience and resources to address these issues, however there has not been a single source that is accessible for that information.  This board is a place to bridge the gap, by providing a forum of sharing and collaboration. Subscribe: autism_insurance_information-subscribe@yahoogroups.com

Disaster Preparedness for Families of Children with Special Needs

Family to Family Health Information Centers (F2F HICs): Helping Families of Children with Special Health Care Needs (12/2004)  A Family Voices publication that discusses the benefits of an need for Family-to-Family Health Information Centers in all states and territories.

Family Voice's Friday's Child Newsletter A weekly e-newsletter containing information for existing and emerging family leaders on topics such as leadership, mentoring, partnering and team building.  Helpful websites, legislative updates, data bytes and FV-Talk summaries are regular features.  This link takes you to the latest issue in PDF.

Copyright 2008 Parent to Parent of New York State. All Rights Reserved.

Janice Fitzgerald - Executive Director
ed@parenttoparentnys.org
(518) 359-3006  or in NYS 1-866-727-6970

Parent to Parent of NYS - Statewide Office
500 Balltown Rd.
Schenectady, NY 12304

518-381-4350 or 1-800-305-8817

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