Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Slides from OPWDD’s September 9th Web Conference on Self-Directed Services

The slides which accompanied last week's presentation are available at the following link:

http://opwdd.ny.gov/opwdd_services_supports/supports_for_independent_and_family_living/consolidated_supports_and_services

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OPWDD to Host Follow-Up Web Conference on Self-Directed Services on Wednesday, September 17th

Because of the turnout of September 9th's Web Conference, OPWDD is offering an additional Web Conference for individuals who are self-directing and their families.  This conference will provide additional updates and answer questions from participants.

 

This web conference is scheduled for Wednesday, September 17th from 5:30 pm to 7:00 pm.

 

To participate in the conference, individuals and families may connect via the Web or directly through the phone.

 

Participants will need to pre-register for the Web Conference, if they wish to ask questions.  To register, click on the following link https://opwdd.webex.com/opwdd/onstage/g.php?d=293873571&t=a  Then click on the gray button in the middle of the screen that says "Register".

 

Participants who only want to listen, may join by calling:  1-415-655-0003 and entering the access code:  293 873 571

 

Please forward this notice or let individuals and families know about this opportunity.  Priority on questions and comments will be given to individuals and families.

 

 

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Resource for the Web Conference on Self-Directed Services

NYSRA, NYSACRA, and NYSARC have issued a joint letter to Acting Commissioner Kerry Delaney urging a delay in implementing changes to Consolidated Supports and Services.  It provides another perspective on these changes and may help families ask informed questions.  We are sharing it with permission.

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Recommended

CSS - Self-Determination Using Consolidated Supports and Services (CSS)

Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services.  It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan.  It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).  

To read more, download the PDF.


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Disability Prevention Poster

Parent to Parent of NYS designed this poster to promote prevention of Fetal Alcohol Spectrum Disorders and Shaken Baby Syndrome.


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Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director




Added / Updated

Caregiving: A Personal Story

By Janice Fitzgerald


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Parent to Parent of NYS Brochure

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Health Care Notebook

A Health Care Notebook is an organizational tool for families who have children with special health care needs.


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Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.


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