Parent to Parent of New York State
A Family to Family Health Care Information & Education Center
Connecting and supporting families of individuals with special needs

 

This page last updated on June 6, 2008
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North Central News
(Syracuse Area)

(Scroll down for Event Listings)
 

All-Abilities Water Sports Recreation Event in the 1000 Islands July 2008

North Country Access 2008 is an all-day all-abilities water sports recreation event taking place at the Antique Boat Museum in Clayton, NY, July 19, 2008. Children and adults with mobility impairments, sensory limitation or other disabling conditions will have the chance to fully participate and are encouraged to register for this rare opportunity in a world that is not designed with disability in mind.

Water sports and educational clinics will take place throughout the day Saturday, July 19 including rowing a traditional St. Lawrence skiff, sailing solo or with an experienced instructor or kayaking the quiet waters of French Creek. For those anxious to try waterskiing appropriate equipment will be available and for those just wanting to stay landbound, fishing off the dock is an option. 

How about a speedboat ride? Bring a secure hat and hold on to your camera while thundering down the River in a gleaming mahogany triple-cockpit runabout from the Museum’s fine collection of wooden boats. On Sunday, July 20 a rafting trip on the Black River will be offered to those interested. Advanced registration is required for the rafting trip. A registration packet and complete event details will be made available at www.ncaccess.org as it becomes available. This event is sponsored by North Country Access Cycling, Northern New York’s chapter of Disabled Sports, USA.  

Download Brochure PDF

 

Self Determination Social Group
       
Are you a family in CNY that is participating  in or considering Self- Determination?  As the parents of a 22 year old son in the Self- Determination Pilot Project and the Parent to Parent Coordinator at Exceptional Family Resources, I am starting a social group for individuals, their  families and support staff. The focus of this group will be to explore the SD process and how it is or isn't working. Social and friendship issues as well as housing opportunities will also be topics of discussion.
        Guest speakers may be arranged and refreshments will be served. We will meet the 4th Tuesday of each month from 7-9pm at: Exceptional Family Resources, 1065 James Street, Syracuse, NY. 
        Please contact :Dru Nordmark  478-1462 ext 322 or by e-mail at dnordmark@contactefr.org

We are still looking for more Parent to Parent Support parents! If you are a parent of a child with a disability or a special medical condition who would be willing to share occasionally a small amount of your time to connect via telephone or e-mail with a parent who is in need of information, support or a listening "ear", please call us at 1-800-305-8815. Your support of, and participation in, our program would be greatly appreciated!!!

SUNY Upstate Medical University will be running a social skills group for children ages 10-12 with High Functioning Autism and Asperger's this fall. A parent group will run simultaneously and, if there is enough interest, a sibling group will run at the same time. Interested families should contact Amy Beal at 315-464-3185 or Aaron Gleason at 315-464-3191 at SUNY Upstate Medical University, Dept of Psychiatry.

Advocate – the Central NY Family Support Services Consumer Councils Need You.
        Parents of children with a developmental disability are needed to participate on the Family Support Consumer Council to develop and monitor family support services for the 8 counties region of Central NY DDSO
        The Family Support Consumer Councils work in partnership with the Developmental Disabilities Services Offices to develop and monitor policies, services and supports to enhance a family's ability to provide in-home care to their family member with a developmental disability. Services range from counseling and training, respite, recreation, to family reimbursement for the purchases of goods and services.
        For further information about becoming a Council member, contact Thomas Neslon – 315-473-6653 or Sarah Nelson at 315-336-2300 ext. 225 or Mary DeRosa at 315-336-2300 ext. 471
 

NORTH CENTRAL AREA EVENTS

 

Medicaid Service Coordination (MSC) for Families - Getting the Most from your Child's Program

Are you getting the most from your child's service coordination program?  Do you understand what your rights are under MSC?  Do you know what to look for when choosing a service coordinator?

MSC for Families is designed to inform families about how MSC works and to explain their rights under the program.  By being informed, you and your child's service coordinator can become partners in advocating for and gaining access to necessary services and supports for your child. 

Family members who wish to register for this class may do so by calling Mary Jo Hebert at 1-800-305-8817.  In addition, we are also available to present trainings on MSC at conferences, support groups, or meetings.  Call today to schedule a training for your group or organization.

Now Available By Video Conference at your local Developmental Disabilities Services Office (DDSO) in the city or town indicated in the list below:

June 2, 2008
10 - 12

Bernard Fineson - Queens
Western NY - Perrysburg
Sunmount - Plattsburgh
Long Island - Commack
Finger Lakes - Rochester
Central NY - Rome
Broome - Oneonta
Taconic - Poughkeepsie
Capital District - Schenectady
Staten Island - Staten Island

Self-Advocacy Conference: Self-Advocates United As One
June 14, 2008
8:00am-3:00pm

Presented by Central New York Self-Advocates.  Keynote Speaker is Mike Cole
“Living Well With a Disability”.  For more information contact Nichole Hastings, Self-Advocacy Conference, 800 South Wilbur Avenue, Suite 3A1
Syracuse, NY 13204  or  315-473-4018 or 473-5080.

Collaborative Problem Solving for The Explosive Child
Saturday, September 27, 2008
Italian American Center
Albany, NY

J. Stuart Ablon, Ph.D. and author of The Explosive Child, will provide an overview of a model of treatment called Collaborative Problem Solving (CPS). The CPS model helps adults teach cognitive skills while reducing the frequency and intensity of explosive/noncompliant episode in diverse settings, including families, schools, group homes, and inpatient and juvenile detention facilities. Sponsored by Parent to Parent of NYS and NYS Developmental Disabilities Planning Council.  For more information call (518) 381-4370 or 1-800-305-8817.

Download Registration Form PDF

 


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Parent to Parent of NYS - Statewide Office
500 Balltown Rd.
Schenectady, NY 12304

518-381-4350 or 1-800-305-8817

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