Parent to
Parent of New York State
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This page last updated on
August 8, 2008
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Recently, the Capital District office has added four new employees to help us better meet the needs of families in our 11 county area. Stacia Kooney, Regional Coordinator, has two children with special needs, a daughter who was born with a congenital birth defect and a son with autism. Stacia states," I began volunteering for Parent to Parent in 2002 as a Lay Advocate and have been advocating for and supporting children with special needs and their families ever since. I love having the opportunity to turn the knowledge that I've gained into a career that helps others meet their children's needs (ask me about my list of "Everything I Wish I Never Needed to Know" sometime.)" Staciap2p@verizon.net or 381-4350, ext. 25. Jim Swart, Regional Coordinator, and his wife live in Fulton County with their two daughters Cassie, 13 and Madison, 9. Madison has Down Syndrome. Jim is a graduate of Partners in Policymaking, an intensive training program for parents and self-advocates that teaches the power of advocacy to change the lives of people with disabilities. Jim's focus will be on building a "Father's Network" in order to meet the needs of dads of children with special needs. JMSwart1@verizon.net or 381-4350, ext. 26. Michele Juda, Upstate Coordinator of the Family to Family Health Care Information and Education Center, assists families of children with special health care needs in making good health care decisions. She also provides trainings on the use of the Health Care Notebook, an organizational tool to help parents keep track of their child's medical needs. Michele and her husband are the proud parents of two sons who were born prematurely. According to Michele, "We experienced the NICU with our oldest son; our youngest son was adopted just shy of his third birthday. He has had extensive hospitalizations and surgeries and continues to struggle with GI and respiratory issues. I look forward to sharing experiences with each of you.” F2Fhealthtools@verizon.net or 381-4350, ext. 27. Donna Sperbeck is our Statewide Coordinator whose job it is to insure that families of children with special needs across the state are connected to the Parent to Parent Regional office nearest them. Donna also provides information and referral on a variety of topics. Her most important job is mom to her nine year old son with Asperger's for whom she works tirelessly to insure his full, valued, and accepted place in their community in Schoharie County. DonnaP2PStatewide@verizon.net or 381-4350, ext. 21. Mary Jo Hebert, Regional Coordinator, also connects and supports families of children with special needs and is available to answer questions or provide training on Medicaid Service Coordination and Accessing Services through NYS Office of Mental Retardation and Developmental Disabilities (OMRDD). cdp2p@verizon.net or 381-4350, ext. 24. As a reminder, the Capital District office has two Educational Specialists on staff to provide information about Special Education and IDEA to parents of children with disabilities and the professionals who support them. Tina Beauparlant can be reached at hyperadvocate@verizon.net or 381-4370, ext. 22. Holly Bartczak can be reached at p2padvocay@verizon.net or 381-4370, ext. 23. We look forward to continuing to serve families of children with special needs in the Capital District and the professionals who serve them. Mary Jo Hebert
Wildwood Programs Family and Community Services Announces Free Parent Workshops for more information visit http://www.wildwood.edu/index.html CHADD/UCB Summer Camp Award Fund 2007 It Takes Two to Talk Spirit of Independence Therapeutic Riding Center, Inc. Autism Training Initiative Positive Family Intervention Project Common Sense Parenting Trainings Four Winds Hospital Community and Professional Education Program Calendar Easter Seals Provides Camp and Recreation Without Barriers for Children and Adults with Disabilities Advocate! The Capital District DDSO Family Support Services Consumer Council Needs You! CAPITAL DISTRICT AREA EVENTS Fathers Network Meeting Parent to Parent of NYS is developing a “Fathers Network” to better meet the needs of fathers of children with special needs. To do so, we need to hear from fathers about what they would like to see from a group for dads only. Interested fathers are invited to attend this informal gathering to discuss what fathers need and how those needs might be better met. RSVP 518-381-4350, 800-305-8817; JMSwart1@verizon.net . If you are interested in participating in the Fathers Network, but are unable to attend the meeting, please call or e-mail me at the address above. Lay Advocacy Training Program The Schenectady office of Parent to Parent of NYS is currently seeking applications from family members of individuals with developmental disabilities to participate in an 8 session Intensive Lay Advocacy Training. The training is designed to provide knowledge about regulations and policies related to disabilities. Participants will develop advocacy skills and become more competent in advocating for their child and other children. The overall intent of this training is to offer skills to help be a more effective advocate, to give participants a better knowledge base of the laws and to improve communication skills. For an application or more information contact Tina Beauparlant or Holly Bartzcak at (518) 381-4370; Hyperadvocate@aol.com or p2padvocate@aol.com . Download Letter and Application Lay Advocacy Training Announcement Letter 2008 in Microsoft Word Lay Advocacy Training Application 2008 in Microsoft Word The Special Education Process: How the Regulations Can Support the Work that You Do! During this workshop presented by Kim Gardinier and Layna Maher participants will be given the tools they need to become a more effective partner in the Special Education process. Individuals will also gain a better understanding of how the New York State Regulations can be a support to them in working effectively as part of the CSE team. To register, call Layna Maher at (518) 388-0693. Directions to CQCAPD and other instructions will be sent once registered. Close Encounters With THOSE People: A Different Perspective on Diversity and Disability Participants will enjoy this exciting activity-based workshop presented by Jo Fenton and designed to provide everyone with resources, strategies and valuable information to better relate to one another and celebrate differences! To register, call Layna Maher at (518) 388-0693. Directions to CQCAPD and other instructions will be sent once registered.
J. Stuart Ablon, Ph.D, who has coauthored a book with Dr. Greene, Treating Explosive Kids: a Collaborative Problem Solving Approach will provide an overview of a model of treatment called Collaborative Problem Solving (CPS). The CPS model helps adults teach cognitive skills while reducing the frequency and intensity of explosive/noncompliant episode in diverse settings, including families, schools, group homes, and inpatient and juvenile detention facilities. Sponsored by Parent to Parent of NYS and NYS Developmental Disabilities Planning Council. For more information call (518) 381-4370 or 1-800-305-8817. The Next Step: Transition Services The intent of Transition Services, as they relate to the Special Education process, is to assist students in preparing for life after school. Take advantage of this workshop opportunity where you will learn about the NYS Regulations’ mandated Level 1 Career Assessment, your role in the process and transition options. Presented by Kim Gardinier and Layna Maher. To register, call Layna Maher at (518) 388-0693. Directions to CQCAPD and other instructions will be sent once registered 7th Annual CARD Conference Keynote Presentation is Instructional Strategies for Students with ASDs by Ilene Schwartz, PHD, U of Washington. For more info: 866-442-2574 or www.albany.edu/psy/autism
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