Parent To Parent of NYS

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Our Mission

Parent to Parent of New York State builds a supportive network of families to reduce isolation and empower those who care for people with developmental disabilities or special healthcare needs to navigate and influence service systems and make informed decisions. 



Headlines and Highlights

Transition to Work or Post-Secondary Education

Taking responsibility, and being able to advocate for one’s own future education and employment will be different for each person.  For everyone, self-direction and autonomy are desired outcomes.  For parents caring for a child and advocating for their child’s needs and education, it is a shift to be guiding a teen or young adult as they move through adolescence towards more independence.    Crucial to this is respecting and supporting an individual’s decisions regarding their future employment or education.  With funding from NYS’ Family to Family Health Care Information Center, the information included in this publication has been developed to assist families and youth with special health care needs and disabilities in exploring work and continuing education.

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Health Care and Transition

Taking responsibility and being able to advocate for one’s own health care will be different for each person.  However, for everyone, self-direction and autonomy are desired outcomes.

 
For parents who have cared for a child and advocated for their child’s health care, it is a shift to be guiding a teen or young adult as they move through adolescence towards more independence.    Crucial to this is respecting and supporting an individual’s responsibility for their own health care and their participation in decision-making.  With funding from New York State’s Family to Family Health Care Information and Education Center, the information included in this publication was developed to assist families and youth with special health care needs and disabilities.
 

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Internet Resources for a Successful School Year

Compiled for the start of the 2013-14 school year by Parent to Parent of New York State.

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Understanding Medicaid Service Coordination

This 8-page booklet is available here in PDF or by contacting your regional office.

 

Click here for Understanding Medicaid Service Coordination -- in Spanish

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Recommended

CSS - Self-Determination Using Consolidated Supports and Services (CSS)

Self Determination/CSS in New York has created a means of developing the potential for individualized, self-directed services.  It offers the opportunity to design services based on an individual’s desires and needs as identified in a Person Centered Plan.  It is a mechanism developed by NYS OPWDD (Office for People with Developmental Disabilities).  

To read more, download the PDF.


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Disability Prevention Poster

Parent to Parent of NYS designed this poster to promote prevention of Fetal Alcohol Spectrum Disorders and Shaken Baby Syndrome.


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Respectful Language Bookmark

Parent to Parent of New York State designed this bookmark to raise awareness about how the language used to describe people with disabilities shapes the attitudes of those around us.


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Guide to Understanding NYS OPWDD Supports & Services

Developed by Parent to Parent of NYS to inform families about the wide range of services available to qualified individuals and to assist them in accessing those services for their loved one with a developmental disability.


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SEFA

State Employees' Federal Appeal

Please consider donating to Parent to Parent of NYS during this year's State Employees' Federal Appeal Campaign.



A Family to Family Health Care Information & Education Center.

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A Message From Our Director


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Added / Updated

Advocating Through Letter Writing

Booklet of information and tips for parents, by Parent to Parent of NYS.


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Health Care Notebook

A Health Care Notebook is an organizational tool for families who have children with special health care needs.


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